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Caregiver Burden Amongst Relatives of Terminally Ill Cancer Patients: A Pilot Study

Virender Bhandari , Vividha Dubey1 , Jayant Yadav2 , Ridhima Ojha3 , Pawan Rathi4 , Ajay Sharma5 , Saurabh Karnawat6 , Virender Bhandari7

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Indian Journal of Cancer Education and Research 9(1):p 33-39, January-June 2021. | DOI: http://dx.doi.org/10.21088/ijcer.2321.9815.9121.4

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Vividha Dubey, Jayant Yadav, Ridhima Ojha/Caregiver Burden Amongst Relatives of Terminally Ill Cancer Patients: A Pilot Study/ Indian J Canc Educ Res 2020;9(1):33-39.

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Abstract

Introduction: Caregiver burden is considered as a “multi-dimensional biophysical reaction resulting from an imbalance of care demands relative to caregiver's personal time, social roles, physical and emotional states,    fnancial resources and formal care resources given the other roles they fulfl. Caregivers usually face multitude of strains, due to varied aspects of life affected by cancer including communication, nursing care, financial concerns and also emotional conflict. It is utmost importance to assess the caregiver burden levels amongst the relatives of cancer patients. Material and Methods: Questionnaire based prospective studywas conducted from January 2019 to May 2020. Descriptive statistics was used for correlation of caregiver burden with clinical and socio-demographic parameters and t-test for comparison of means and p value less than 0.05 was considered as statistically significant. Statistical analysis was done with IBM SPSS Statistics version24.0. Observation and Results: We found 50 caregivers with mean age of the 41.54 ± 13.35years with male (64%) preponderance. Most of the individuals were kins and spouses. Majority had mild to moderate burden (56%). The mean caregiver burden was 33.22 which was significantly correlated with age of caregivers (p=0.012). However, statistically significant correlation was seen with caregiver relation to patient (p=0.036) and their education (p=0.059). Conclusions: Majority caregivers had mild to moderate burdenthis implied that they were aware of the responsibility bestowed upon them. However, severe burden seen among children warrant urgent need of attention towards with counselling, interactive session.Proper counselling centers be set up in cancer hospitals and appropriate interventions and support groups be formed to help caregivers.

Keywords: Caregiver Burden; Relatives; Terminally III Cancer patients

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Cite this article

Vividha Dubey, Jayant Yadav, Ridhima Ojha/Caregiver Burden Amongst Relatives of Terminally Ill Cancer Patients: A Pilot Study/ Indian J Canc Educ Res 2020;9(1):33-39.

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DOI: http://dx.doi.org/10.21088/ijcer.2321.9815.9121.4

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