AbstractIntroduction: Although optional medical management has reduced the difficulties faced by Thalassemic children and their families, still the psychosocial impact on the development of the sick children and family is a continuous process throughout life. It is possible that uneducated, poor and socially maladjusted parents are more affected in comparison to those who are educated, economically sound and socially well adjusted. The psychosocial burden can affect the quality of life of the care givers. Method: Descriptive cross sectional design with 70 care givers of children with Thalassemia Major admitted in Thallassemia unit of UMED hospital by using total enumerative
sampling technique was selected and PSS instrument was used to collect date for 7 to 10 minutes through interview approach of self reporting. Association of demographic variables and level of stress was assessed by χ2 and mean & SD. Result: In this present study the care givers experienced moderate level of stress last one month indicating that they have more burden in caring children with thalassemia Major. Study showed that there was no association exist between the demographic variables such as, number of children, and number of children with chronic illness occupation family income and diversion activity, other demographic variables such as age, respondents and, education
had significant association. Conclusion: The care givers stress need to be addressed adequately with appropriate interventional package. Care givers need frequent guidance and counseling services and need to follow divisional activity to keep them healthy mentally. It is the nurse’s role to help caregivers cope with their family and hospital environment by providing adequate health teaching, and directing necessary resources for the caregivers.
Keywords: Stress; Care Givers; Child with Thalassemia
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